Today is her angel day.

I usually spend my daughter’s death day in quiet reflection and self-care. It has been the best way, for me, to manage the washboard of grief that comes near my daughter’s death day and birthday. I take a deep heavy sigh after the days pass as if it is another milestone achieved. Never celebratory, but making it through yet another date on the calendar that reminds me of a past life where I lived as a mother and this present life that is vastly different. The two often collide this time of year. 

There is a struggle that happens as September comes and while I’ve been at this grief journey for many years, I find there are just some things I don’t want to think about or write about anymore. The pain is too deep and wounds still raw with pain and anguish. Facing this loss year after year can be just too much to bear. As I write this, tears spill from my eyes because I still cannot believe she was taken from me. The questions of why her, why me, may never be answered. But yet I ask.

I hide this as best I can because the vulnerability of it can take a toll on not only me, but the person experiencing it with me. It is the loneliest journey one can be on. It’s a lifetime of flashbacks, of pain and sorrow. It is a wound that never truly heals. This time each year, it’s like the wound opens up and the pain so severe it takes my breath away.

I know hiding is not the answer because the pain and sorrow comes out in my behavior. I withdrawal and become unsociable. I hide behind the pain so no one else can see it. Only those close to me see through it. How can it not? My only child died.

Nothing will ever change that.

Until next time,

Mal

Grief is Complicated

“The powerful surge of sorrow and grief, and the magnitude of the empty space that resides in my heart and in my life since Brittany died, is real. It’s not some story that happened to me. Every October 13th, I am reminded my journey is far from over. Some days it feels like I just started this journey yesterday, and other days it seems like a lifetime ago.” – Mal Moss, Grief Blessings, The Story of Unimaginable Grief and Unexpected Blessings

I’ve struggled of late to find the words or the will to write. I’ve given it a lot of thought and the quote from my book “Grief Blessings” above captures the essence of my grief journey. I’ve only had a few times since I began to write where I couldn’t find the energy to write. Words usually come easily to me. Even as I sit here writing this, my mind just wanders and the distractions around me are so loud. 

This morning while riding my bike it occurred to me that I’ve been “retired” from my nursing career for almost a year. From the time Brittany died, I worked. I worked extra hours/shifts. I stayed busy. It was an avoidance behavior that kept my grief in check. The pain from the incredible sorrow my heart felt was just too much to bare. The work was exhausting leaving me without energy to battle the grief. Years went by. 

I accepted any type of job change that would increase my career because I wanted to feel valued. I needed to find a place for the motherly love and care spent on my child for nearly 18 years. Work became that for me. I moved from Michigan, Indiana, Atlanta and finally Florida because change kept me busy. Now life “fast forward” has slowed down since retirement and I am struggling to feel valued. Alone with these new feelings of being inadequate at life. Sitting here wondering how it happened. It happened because I pushed it away by working. I avoided grief like the plague. And now in retirement, grief is ever present but different.

I’ve never had a problem with being alone (by myself). Feeling lonely, is altogether different. I’ve never felt so lonely on this journey as I do right now. I really don’t have someone to talk with who would understand. Therapy over the years has helped but this I’m afraid is something I’m going to have to battle out on my own. In hindsight, retiring may have been a mistake. My work friends, many were closer to my age, made me laugh and created a space for me to sit in that didn’t sound or feel like grief. Now I’m facing it straight on, alone. 

Because I’ve moved so much over the years, I really don’t have close friends that live nearby, especially closer to my age. I’ve heard that making friends as you get older can be hard and I couldn’t agree more. It’s been very hard. I’ve always been a young soul who didn’t have much in common with those my own age. Now don’t get me wrong, I love and adore the people in my life now. They make me laugh and make life tolerable on days when I’m not at my best. They simply don’t have the life experiences I’ve had and talking about those experiences and how to manage them is something I need. I need to hear from people who’ve walked through the fire.

Retirement has complicated my grief.  The multitude of feelings that come from retiring from a successful career, like: getting older, recognizing my own mortality and seeking to find value, have also complicated my grief journey. The sum totality of loss has evolved into a new grief. It feels like the two worlds have collided and finding a way to talk about those feelings sits at the top of my list. I’ve never been one to “chat” in grief support groups because I always felt like I had a handle on things. But the unfortunate truth is, I do not. It’s hard to look at yourself and come to the realization that you don’t have it all together. You don’t have all the answers. That is new to me. 

Until next time

M

Breath-taking love and heart-breaking pain

It took me a while to name this blog post. I already had in mind what I was going to write about, but most of the time the title isn’t a problem. It’s not about creating a show stopping headline – it’s about creating a message that reaches out and grabs the very person who needs to read this.

Four years tonight I sat in a PICU watching my sweet baby, who was almost 18 years old, lie quietly in a bed on a ventilator after suffering from a grand mal seizure. I wonder some days if I had known what was going to happen 11 hours later, would I  have handled things differently. I don’t know. But what I do know is that it wasn’t in my control. God was in charge of this outcome.

As I sat there watching her, I remember thinking how are we gonna get out of this one girl. I talked to her constantly, hoping by some miracle that she would respond. It was so hard to sit and wait. To sit and watch and feel helpless. This child of mine, who I loved with such joy, who struggled her way into this world, was now struggling to stay in it. I would every so often sweep her long red hair away from her face and tell her a story about when she was young. Some of the things she would say hoping for some kind of response. There was none.

After a short while things turned ugly and she took a drastic turn for the worse. A code was called and we were told we probably will want to wait outside the door. The nurse in me wanted to stay, but the mother in me knew I had to wait and let them do their work. I couldn’t watch what I knew was about to happen. It’s a hard thing for the body to go through when it is being resuscitated. Hell it’s hard on everyone involved. So as a parent – I don’t recommend watching – it’s a traumatic event and one that you can never totally shut out of your mind.

They managed to get her back and then I took my place again at her bedside and just stroked her arm and head the way a mother would pray for a miracle. Praying she would awake from her coma and say “mom I want to go home”.  After hours and hours of sitting and watching machines make endless amounts of noise. She would move and then the nurses would come in and make her more comfortable.

Then again she became unstable and a code was called again. And again we were shuttled out of the room. This time it took a little more time, a little more medication and a little more of my little girl. I know that because I’m a nurse. Then I really began to pray. This had been the 3rd code of the night. Things weren’t looking too good and I had a bad feeling in my gut that told me what I didn’t want to face. The probability that she wouldn’t come out of this alive.

As a parent, or even better as a mother the love a mother is capable of is incredible. It’s like this vast amount of emotion welled up inside of your heart that bursts every time you see the life that was given to you for such a short time. People don’t get this type of love unless you’ve given birth. But I really don’t think parents get this unless they have lost a child. I call it “breath-taking love”. When I would look at Brittany sometimes I would just think to myself – “God she is just so beautiful and I’m so lucky she is mine”.

But in reality she really belonged to God, and he just gave her to me for a while to care for. To love endlessly and to mold her into the wonderfully funny young woman she grew into being. Without a doubt I couldn’t have been more proud to be her mother. She taught me so much about how people should be more accepting of others. How to pay it forward. How to not be judgmental towards others.  She truly blessed my life beyond measure.

At 6:55 am October 13th I said goodbye to the only thing that ever really mattered to me. My daughter died after complications from a seizure. I walked out a heart-broken mother. An empty shell of a person who has existed for 4 years in this life that I hadn’t planned on. That I would have never planned on.  My life ended on that day. The life I knew. The life I thought I’d have – all gone.

I miss my girl more than I can say. The words don’t even come close to the pain that will always be there deep within my heart from her absence. Some days it’s just plain hard to function. Some days it’s all I can do to just get through the day. My life has been so empty for so long. It’s hard to see the future some days. But I do feel something different now. Life is creeping back. My heart is healing, but the wound is still very raw and at times it feels like it’s going to kill me.

I feel I am capable of letting love back in my life, and back into my heart. I never imagined I’d be able to trust love again. For me love always meant loss of some kind. But I have a faith that is strong and I  believe in a God who wants more for me. Wants me to be who I am supposed to be now. To love again. To feel passionate about life again. To feel like I matter in this world.

So I am here and I am present and I am ready.

until next time

m