Memories are a Gift

One of the things I think we all fear when a child dies, or for that matter any one that is close to us, is the loss of the memories of them. As time passes year after year it feels as if there is this unspoken distance where I feel that it takes more effort to go back to a place in time and think of some of the great memories I have of her and our life together. Especially the last two years of her life. This has been my greatest fear of all.

As on that fateful day October 13th, 2006, the day she disappeared from my life, I feel that the memories are now fading away just as she did in a physical sense. While I do have videos, photos, a few items I’ve put together of hers that meant the most to her; it is know that she lives on in the memories of those who loved her most. Her friends have stayed connected with me over the years and I’ve been so grateful for that.

At Brittany’s funeral I spoke of them, yes I was actually able to speak which was a miracle in itself. They befriended my daughter, loved my daughter and became a very important part of her life, while many distanced themselves, bullied her, excluded her, all because she was a little different. But not her closest friends. And of course, the love of her life. I have such great memories of how they would hang out at our house on Eastlawn and we would have so much fun. As a mom, I cherished those times because I knew they meant the most to my girl.

At her funeral they got up and spoke about her and what being friends with her meant to them. I had no plans to speak at her funeral but after hearing their stories and seeing the dog tags they made in her honor, I felt compelled to speak. As many of her classmates stood in the back, as there was standing room only that day, I shared my gratitude to her friends for taking the time and investing in my daughter. They were given the greatest gift back and that was her devoted love of friendship, a terrific sense of humor and many hours of laughing. I felt so strongly that many did not know this side of Brittany. On that day I think a few realized just what they missed out on.

The memories I have of my daughter are firmly fixed upon my heart and soul and while the business of life distract me from sitting and just remembering her, I don’t ever think they will ever disappear. Today, the sweetest gift came to me in a text from one of her closest friends. She shared a memory that means a lot to her and little did she know that it would mean more to me. It gave me the greatest gift, better than anything material. And it’s this simple, but profound message…..

Brittany is still alive in her heart and she still feels connected to her through those memories. I wept when I read it, and I laughed when I read it. But most of all it touched my heart in a way I am sure she cannot imagine. For that I am and will be forever grateful.

It’s so very important to those of us who have lost our children, that we know they have not just disappeared from this earth, but that their memory, the impact they had on others, that the love shared has not disappeared, but perhaps even moved them into a space now that has made a difference to them. The lessons we learn from those departed can be the best lessons of all.

So if you live in GR, go sit on her bench and spend a few minutes remembering her and laughing out loud because you know she is…..

until next time
m

Margin of Space

This past week I heard a message about living though your days are numbered. As I listened to the message I realized that might be harder for some to come to terms with. That is, if you haven’t experienced grief or loss on some level the concept of seeing your days as numbered might be a stretch. In looking back over my life, I don’t recall ever thinking my days were numbered or that God had the exact day of my departure from this world. I don’t think I ever really gave mortality a second thought. That was until Brittany was born.

After having a child you come to understand that life is bigger than you. The decisions you make and the paths you take can directly affect your children’s future. It changes the way you think about life. You begin to wonder what life would be like in the future. You begin to dream of what will become. We plan for our children’s school years, we save for their college, we help plan their weddings and see them have their own children. Then we plan for our retirement. Worry about if there will be enough money to support the golden years. So are you getting the picture. There is a lot of planning going on during this time, and I would guess to say not much living in the moment going on.

When you have experienced loss, especially the loss of a child, all that planning, all that worrying, late nights up wrestling with what if, becomes unimportant. A waste of time. Now I’m not saying one shouldn’t plan for life; but the amount of time is what matters. It’s that margin of space in life that is very small in comparison to the universe. We have such a small amount of time here on earth. Yet we spend it planning, worrying, fretting, filling our calendars with various to-do items. Then one day you wake up and it has all been wiped away by loss; and you are left with an empty calendar, no plans, life lost and no idea what to do with yourself.

I found after my daughter’s passing that life matters more than we give it credit for. We spend so much time planning and scheduling that we forget to live in the moment. That margin of space called now. Don’t get caught up in the draft of a fast-moving lifestyle. Don’t forget to look at those you love and remind yourself that tomorrow is not guaranteed. Life is just a whisper of a moment in time. Stop and listen to what it has to say. Reduce the noise of your life for just a moment – the message you get may be life changing.

until next time,
m

Grief at Christmas

Red Haired Angel

Grief at Christmas is like no other. Grief knows no day or time, it comes and visits you when it wants and however it wants. No Christmas, or Easter or Thanksgiving holiday keeps it away. When a child dies, those holidays are hard. It doesn’t matter how long it’s been or how it happened. The holidays are never the same.

I have had to change my view of Christmas especially since the death of my daughter six years ago. This will be my 7th Christmas that I will not be wrapping fun gifts for her to open on Christmas morning. I will not be getting up early to watch her open her gifts and see her funny face and how she would always put bows on her head and face as she collected her gifts. If you haven’t lost a child, you can’t know the gravity of this space.

This space of grief is overwhelming at times to the point that nothing makes sense and y ou want to go back to bed and cover up and forget it all happened. But it did happen and it happened to me and perhaps it’s happened to you. I know it’s hard. There are no words that can adequately describe the pain and sorrow that the loss of a child can bring. The recent events in Newtown Connecticut brings it all back. As I imagine and know all to well, how these parents are feeling today. It’s numbing, it’s painful and it hurts beyond belief. Waking up to know and understand that there has been a huge hole created by the loss of your child is unimaginable.

The stages of grief are a welcome in the early days. Shock helps you get through the difficult early days that follow a loss. In fact, I found myself preparing to celebrate my daughter’s life during the three days that followed her death fairly painless. Even speaking at her celebration of life seemed to come easily to me. It was the days to come that made me drop to my knees and asky “why”.

My dear friends, these newly grief-stricken parents are going to need so much love and prayer in the days, weeks, months to come. Each day that passes the loss becomes bigger and harder to manage. Please don’t forget them. They need us. As a nation we need to lift them up in prayer and support them however we can.

I know and understand all to well just how much prayer and support means, even today 6 years later. I still get cards, Christmas gifts from those “angels” who supported me throughout my most darkest days. I know they are moved by God to provide and support, whatever means that is, it’s a gift to those of us who grieve.

Christmas, while it is a time to celebrate family, it is also a time to celebrate the greatest gift of all, Jesus. This is how I make it through – remembering the real reason we celebrate this holiday. Because if left to celebrate it as I have in my past, I’d never make it through. So I am thankful this holiday season. I have been given much. I have been blessed beyond measure. And yes, while I have lost much, I have been blessed with much more.

Merry Christmas, Happy Holidays however you celebrate.

until next time,

 

 

While loss does…

While loss doesn’t define who you are it is your response to it that defines who you will become. I have written about this numerous times and I stand by it – we have a choice. The choice we make during these moments in life, whether it is personal tragedy or horrific loss – will define our future. It will mold you into who you are to become. – Mal Moss

I wrote this a while back as part of the following blog post: https://mysoulspeaks.wordpress.com/2012/09/15/to-live-and-mourn-simultaneously-2/

I hope it speaks to you wherever you are in your journey.

Until next time,

M

Birthdays Are The Toughest

It has been just six short years since my daughter passed away and today would have been her 24th birthday. It is the seventh birthday I have had to endure this lump in my throat that comes on the eve of November 30th and stays until I choose to release it.

Her angel date is always difficult, but it’s her birthday that I find extraordinarily difficult to think about. Birthdays represent life, birth a promise of a future to come. One filled of years and years of joy and yes, even some sorrows.

I fought so many years to have her. Suffered from many painful and expensive infertility tests and finally she was born. Even that wasn’t without difficulty. Last minute c-section and a dislocated hip but it was the most joyous moment of my life.

Throughout her life I had to hold on tightly to her as she had suffered from different illnesses from having a bout of encephalitis at 11 months. But mostly we just survived life the best we could. But there was always this nagging feeling that something wasn’t quite right.

In looking back the many years of fighting for her rights, her healthcare and her life – it seems as though life was always a battle. But there were also so many moments filled with joy and happiness. Laughter came easily to her despite her many setbacks over the years. She faced life like no one I’ve ever seen.

Perhaps that is why her birthday is the hardest day for me to live through. Each and every one represents a loss so profound in my life because I fought so very hard to have her, keep her and care for her. Every fiber of my being went to be her mother. Her caretaker and she – she was my everything.

As the tears stream down my face, I can’t help but also laugh because she made me laugh. She made me proud to be her mother. She made me a better person. And although today will be hard. I know she lives on in our hearts and minds. And I will see her again soon.

In the meantime I will continue to honor her life by doing the things I know she loved – loving people.

until next time

m

What’s Next

One of the many trials on the road of grief is finding our way to what lies ahead for us. Making our way through the pain and sorrow that has permeated our hearts for so long – it’s as if we don’t know how to take that leap of faith into “what’s next”. So often we are told that things will get back to normal, but seriously that is far from the truth. What we knew of normal has all but left us and we are left with a heap of a life that seems foreign and no playbook to follow.

God leads people in different ways to embrace life anew, but those ways invariably will involve the demonstration of genuine faith, love and hope. – Dr. John Terveen “Hope For The Brokenhearted”

 

At some point it becomes time to address the “what’s next” and take that leap of faith and pursue life with hope and love. One of the ways that worked for me was to “arm” myself by soaking up as much of God’s word as I could. I also had to get it from a variety of ways: bible reading, Joyce Meyer and TD Jakes and of course, my church family. So for a couple of years after Brittany’s death I pursued God passionately with reckless abandon. I soaked up as much as I could learn, feel, touch and breathe.

What I came to understand is that God had this. His plan wasn’t something I understood or comprehend. But in faith, I accepted whatever was to come and to do my very best to follow that plan. The one message I got over and over was this message from Paul – “encourage one another”. This blog was born of that message and continues today to be what I believe is the plan to honor my daughter’s life, the journey I have been on during and after her death to where I am today.

I have a desire to take this blog to another level and that is what is next for me. It will take some planning on my part, prayer on my part and a lot of faith on my part. But it’s God’s plan. Where I need to be and where I exist is paper thin. I wrote that line a few years ago and honestly believe this is where a lot of us find ourselves. It takes energy to move out beyond our comfort zone. It takes faith.

I find that in getting to “what’s next” I do need to step back into the plan by first feeding the soul. Bathe myself in God’s teachings and those who He has bestowed the skill of teaching to keep my faith strong, my love bold and  my life renewed. I pray that for you all so that you too can step into “what’s next” and find the purpose to move forward into your new normal.

Until next time,

M

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Grief Blessings's avatarUnimaginable Grief Unexpected Blessings

Denial is one of the stages of grief. We have all experienced denial at some point in our journey of loss. It comes and goes, the cost of denial can be great. In the early days of grief we are somewhat protected by shock. You just find yourself going through the motions to get through the long days. But once shock leaves, denial can bring you to a place of avoidance.

I visit avoidance more often than I’d care to admit. Even today just entering my sixth year of my journey after losing my only child Brittany, I find avoidance creeps back in when it comes to facing my grief. I know there are some that believe that at this stage, I should not be dealing with these feelings, but I’m here to say that grief never leaves you, it just becomes part of who you are. You learn how…

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Happy Thanksgiving – 2012

What Will Matter – Michael Josephson

Ready or not, someday it will all come to an end. There will be no more sunrises, no minutes, hours or days. All things you collected, whether treasured or forgotten, will pass to someone else.

Your wealth, fame and temporal power will shrivel to irrelevance. Your grudges, resentments, frustrations and jealousies will finally disappear.

So too your hopes, ambitions, plans, and to-do lists will expire. The wins and losses that once seemed so important will fade away. It won’t matter where you came from, or on what side of the tracks you lived, at the end. It won’t matter whether you where beautiful or brilliant. Even your gender and skin colour will be irrelevant.

So what will matter? How will the value of your days be measured?

What will matter is not what you bought, but what you built; not what you got, but how you gave.

What will matter is not your success, but your significance. What will matter is not what you learned, but what you taught.

What will matter is every act of integrity, compassion, courage or sacrifice that enriched, empowered or encouraged others to emulate your example.

What will matter is not your competence, but your character. What will matter is not how many people you knew, but how many will feel a lasting loss when you are gone.

What will matter are not your memories, but the memories that live in those who loved  you. What will matter is how long you will be remembered, by whom and for what.

Living a life that matters doesn’t happen by accident. It’s not a matter of circumstance but of choice.

Choose to live a life that matters.

May you all have a blessed and restful Thanksgiving holiday with your family and friends.

Malissa

This blog post tells the tragic story of the events leading to my daughters passing.

Grief Blessings's avatarUnimaginable Grief Unexpected Blessings

It took me a while to name this blog post. I already had in mind what I was going to write about, but most of the time the title isn’t a problem. It’s not about creating a show stopping headline – it’s about creating a message that reaches out and grabs the very person who needs to read this.

Four years tonight I sat in a PICU watching my sweet baby, who was almost 18 years old, lie quietly in a bed on a ventilator after suffering from a grand mal seizure. I wonder some days if I had known what was going to happen 11 hours later, would I  have handled things differently. I don’t know. But what I do know is that it wasn’t in my control. God was in charge of this outcome.

As I sat there watching her, I remember thinking how are we gonna get out…

View original post 846 more words