It has been just eight short years since my daughter passed away and tomorrow would have been her 26th birthday. It is the ninth birthday I have had to endure this lump in my throat that comes on the eve of November 30th and stays until I choose to release it.

Her angel date is always difficult, but it’s her birthday that I find extraordinarily difficult to think about. Birthdays represent life, birth a promise of a future to come. One filled of years and years of joy and yes, even some sorrows.

I fought so many years to have her. Suffered from many painful and expensive infertility tests and finally she was born. Even that wasn’t without difficulty. Last minute c-section and a dislocated hip but it was the most joyous moment of my life.

Throughout her life I had to hold on tightly to her as she had suffered from different illnesses from having a bout of encephalitis at 11 months. But mostly we just survived life the best we could. But there was always this nagging feeling that something wasn’t quite right.

In looking back the many years of fighting for her rights, her healthcare and her life – it seems as though life was always a battle. But there were also so many moments filled with joy and happiness. Laughter came easily to her despite her many setbacks over the years. She faced life like no one I’ve ever seen.

Perhaps that is why her birthday is the hardest day for me to live through. Each and every one represents a loss so profound in my life because I fought so very hard to have her, keep her and care for her. Every fiber of my being went to be her mother. Her caretaker and she – she was my everything.

As the tears stream down my face, I can’t help but also laugh because she made me laugh. She made me proud to be her mother. She made me a better person. And although this day will be hard. I know she lives on in our hearts and minds. And I will see her again soon.

In the meantime I will continue to honor her life by doing the things I know she loved – loving people.

until next time

m