In the face of my own misery blooms love.

Yesterday was a very bad day. So bad that I wrote a letter to my friends and family. Then I slept for a few hours hoping that I wouldn’t wake up, but I did thanks to some noisy teenagers outside.

Then I went to bed and woke up thinking why the hell am I still here. How can there be any purpose in staying when all around me my world is shattering. I keep doing what I am suppose to do. I pray, I vision, I believe – yet the opposite is what I attract. Why is that.

I was looking in the mirror this morning and thinking how can I do this again. One more day. But I do. I pick it up and I keep going. Funny thing is I don’t why. It’s just what I do. I spend a lot of time asking God if you want to stay and do work – I need energy, I need hope, I need the black cloud that travels over my head to go away.

I speak to God as if he is my best friend, well he is. I remember while reading the book “The Shack” thinking if God truly showed up and spoke to me in the vision I have in mind of who he is, I’d have a heart attack. So instead he sends people, my friends, and some only people I have met via Twitter or Facebook to me and the messages they bring remind me of what questions I have been asking God. Kind of freaky I know.

But what message I got in speaking of my own misery, I received blossoms of love and friendship from many sources. Sources that I wouldn’t have expected. People I don’t know or know well. People I’ve known for a short time.  These people reminded me that I matter. That what I am here for I do not know, but one day it will come to me and I’ll be glad I made it through these rough spots.

Thanks for hanging with me my friends – you know who you are.

until next time

m

what i believed is not what has come to pass

For 31 months now I have lived a life that was not as it seemed. I became two people. One for you and one for me. I put on a face for you to keep the pain at a distance. Mostly because you didn’t understand. You couldn’t and I don’t blame you. But it’s been incredibly hard and with all of the other battles I’ve had to fight the energy has left my body and what has remained is a shell of a person. I’ve glimmers of moments where I thought I could make it throuh, but as it turns out – I cannot. I’m tired. The battle has been more than I can bare. The contant incoming attacks have overcome my abilities to see any future worth pursuing. Yeah maybe I could help others, but when you can’t get a break yourself, it’s hard to extend something you don’t have. Tonight I will re-read Job and then I will sleep.

God Bless You all,

Malissa

Hugs

Today I heard on the news that hugs were very popular with the younger generation. I’m thinking, I am pretty fond of them myself. But what was so disturbing is that the school system mentioned in the piece was trying to stop hugs from happening. Seriously, I’m thinking to myself – “aren’t there more important things we should concerned about in our schools than students showing love and support for one another”? Shouldn’t we be focused on the students who are failing in school, or the bullying that occurs in our schools (that schools turn a blind eye to). Or maybe even the students who are coming to school hungry, with no clothes to wear or a place to live”.

But no, they are focusing on keeping students from hugging everyone. How incredibly stupid, insensitive and unbelievably idiotic it sounds. I do hope the school administrators where watching the evening news and I do hope that they saw how misguided their attempt sounds and that they will focus on the more important issues facing our  schools today.

I remember so vividly the hugs of my daughter Brittany. How my empty arms ache now at the absence of her. I never knew how much it meant to me, those snugly little hugs, until they were gone. I miss her so much it hurts, but I live on to continue her love and hopefully one day to love again.

I say – go out and hug someone today. Show kindness. Show love. Pay it forward. Ignore random acts of stupidity.

until next time,

M

Blessings Verses Loss

I was watching a show once and a family was interviewed about their experience in losing their young son. I Believe the boy was around the age of 8 or 9 years of age. The dad hadn’t yet been able to come to terms with the death, but the mother, she had a totally different way of thinking about the loss.

I remember what she had to say was one of the first blessings or “turning points” if you will, that moved me forward in my journey of grief. The road to peace has to be paved with blessings, the ones that you see or feel.

When asked how she had come to terms with her son’s death, she said that I see his life as a blessing and the time I had with him as a blessing. I choose to see the blessing and not the loss. I remember this show was very early in my walk of grief and I remembered thinking “wow, I want to be there, I want to feel like that”. At that time I was still blinded by my curtain of grief. A cloud of pain and sorrow that followed me where ever I went.

Now I can see where that mother was coming from. Now that I am 2-1/2 years out, I can understand how she could see the blessing more clearly.  I currently work with grieving parents who have recently lost a child and although I don’t get a call often (thank goodness) it gratifies me to know that I can offer some kind of beacon of light for a family who can only see dark. And it’s all because someone came along side me, even without physically knowing them, helped me see that there could be light at the end of my very long and dark tunnel.

The blessings are easier to see today, than yesterday. The loss is still a loss, but it is less painful. The hole will forever remain in my heart, but the blessings are what make me able to talk about her and laugh now. Instead of crying, wailing, sobbing and wishing that I were not alive.

What people need to know is its a long and horrific road, one that will take a lifetime to follow, but if we come along side them and show them light, even in their darkest of hours, they will begin to see the blessings for the light will provide a means to see them.

until next time,

m

A Moment of Reflection

On Wednesday, May 20th my daughter’s high school, in particular the Class of 2009, honored us with a bench with a memorial plaque dedicated to our daughter Brittany. She was a student in the system since 2nd grade and died while a senior. She would have graduated in 2007.

Brittany's Memorial Bench

As I look back over the last few days I am so proud of what a legacy my daughter left for us to keep working on. She taught me so much as a mother, and she continues to teach me as I grieve the silence of her voice, the absence of her physical presence and the infectious laugh that I’ll never forget. She taught me that inspite of your difficulties you must see the glass as half full. Never half empty. Despite a life-long, chronic illness of Epilepsy and Crohn’s Disease she saw life as an adventure. But it wasn’t always that way.

It took her awhile to get to that level of maturity. It took meeting the best friend of her life, the love of her life and a trip to Costa Rica to learn what was important in life. I remember a conversation we had a few weeks before her passing when she was acting out some and I finally called her on it and I asked her “what’s going on”. We talked and she finally came out with what was bothering her.

She said, “mom, if Andy really knew me, he wouldn’t love me. If he knew I had all these problems he wouldn’t love me.” I looked at her sad face and gave her a big hug and then I told her, “Brittany, Andy loves you because of who you are not what you have. You are who you are because of these problems. These problems have provided the means for you to see the world like many other should see it, with a value on love, life and purpose. And that is why he loves you.” – she laughed and said “Thanks Mom” gave me a big hug and ran off. That was our last conversation about life.

until next time,

m

love continued

Ok – so yesterday I stirred up somethings and I though it best I reworded what I said to make it more clear what I’m talking about. It was late and I was tired when I wrote yesterday.

Most people don’t know about my life or how it started. I am not going to go into that now, but it does have a great deal to do with the way I think about things today. Having lost my mother while 7 months pregnant with Brittany was devastating to me. It took me 5 years to get to a place of peace with her death. It was at that time that Brittany was diagnosed with Epilepsy. So I went from one type of grief to another.

When a child gets diagnosed with a chronic illness – it changes the direction of their future. You always wonder how they will turn out, if they will have all their abilities, will they be able to go to a normal school and go on to college. Get married, have children, etc. Then as time passes you realize that some of those things may not happen. The grief that you have carried begins to change again. But you press on and you keep believing that things will get better. And they do for a while.

After Brittany’s death I came to the realization that I would never see my daughter go to college, get married, have children or become the person she wanted to be. Nor would I become the person I thought I would be –  a grandmother. I dreamed of the day that I would become a doting grandmother like my own. On October 13, 2006 that was robbed of me.

So for me, loving someone so deeply as I did my mother, my grandmother and my daughter and having them die creates a sense of equating love with loss. Therefore, that is what I was talking about when I said I didn’t think love was in my future. It’s because losing one more person – well I just don’t think I’d have it in me.

My friends do not worry about me. I’m doing ok – I help others who are grieving and it helps me. But love – don’t know how that fits in the picture. I give love of myself to others in need, but to give love from my heart like the love I had for Brittany – well – it just doesn’t seem possible. The pain is too deep and too hard to bare.

Most of this is covered in much more detail in the book, which should be done by the end of the summer.

More on that later,

until next time,

M

love

I’m not sure where I stand on love. If you would have asked me before my daughter died I would have told you that I totally believed in love and probably would have told you that I was in love. That I had given my heart to someone. But they crushed it. I didn’t think I was going to recover. Then my daughter died.

That left a huge hole in my heart that I doubt will ever heal. I think it has scared over, but love, I don’t think it’s possible to love again. At least to the level I was able to love before. That capacity has been diminished by the scaring that has surrounded my broken heart.

What saddens me most is when I see people who take love for granted. They treat each other with disrespect, or don’t validate who they are as a person. Some people go through life never really feeling validated or loved. That is so sad. So how do we begin to heal that part of our life. We rely on God. We lean into God and ask for the energy, healing, the trust to love uncondionally again and hope that it can happen again.

I remember as a younger girl loving the movie Love Story. Hearing the words “love means never having to say your sorry”. To me love means “love hurts, love = loss” I have to change that in order to survive. I have to find a way to create love and give love without the worry of losing someone.

I’m ready, I think. But only God knows who and when my time will come.

Love everyone, Hate no one, Accept all, Deny none.

until next time

malissa

I’m so sorry my sweet baby!

It’s taken all day, but it finally happened. I started thinking about Brittany and the tears and sobbing came like a flood. Uncontrolled sobbing has to be cleansing to the soul, because you feel so drained afterwards.

I started out apologizing to Brittany because I try not to think of her as much. Why you ask, because when I do, the thought of living one more minute without her becomes unbearable. It’s easier to just put my blinders on and keep busy, otherwise the grief is like a watershed that flows over me and I begin to drown in my own sorrow. The sorrow is so profound – you cannot imagine. It’s painful to keep going my friends. More painful that you know. More painful than I let on. I show you what you want to see, not what is true.

Remember I’m a nurse, a caregiver – I protect those I love from the bad stuff. Even if it kills me.

m

Motherhood in Grief

I wrote this poem in May of 2007, approximately 6 months after my daughter’s death. On this Mother’s Day it continues to be relevant to my feelings today.

Motherhood in Grief

Where has my girl gone?
For once she was in her room,
laughing on the phone, and
now she is gone.

Where has my girl gone?
For once she was dancing and singing,
loving and laughing at me,
now she is gone.

Where has my girl gone?
For she once needed me,
to fix her hair, pick out her clothes,
show her the way, now she is gone.

Where has my girl gone?
The one that I care for
24-7, 365 days, for 17-3/4 years.
The one who cared so much,
for others, but got so little in return.
Now she is gone.

Where has my girl gone?
Who showed us how to love,
unconditional without barriers.
Who wished to be normal, like
her friends, to be loved.
Now she is gone.

Where has my girl gone?

You see my friends,
she is in the arms of God.
Where she needs to be, she
deserves to be, where she
no longer is subject to the
cruelties of this world.

It is a blessing on this Mother’s Day that I can smile and know she is in the presence of our God who is now her protector, her guide, her love, her life, her everything. She is celebrating her life and before God and as her mom – I’m happy and satisfied she is safe.

As a mother, what more could you want for your child. It’s the ultimate wish. Everything else is selfish!

God Bless All Of You Mothers!

It’s the greatest job in the world and the hardest to give away! I cast mine on the Lord and I can’t wait to see her again!

Until next time,

m

I Can’t Speak

I Can’t Speak

I can’t speak because the pain is stuck in my throat.

I can’t speak because the words are too hard to hear.

I can’t speak because the words make it real.

I can’t speak because when it sounds real and it feels real,

it is real.

until next time

m